PPT-Pilot survey on on-line patient registries

Go Yoshizawa Osaka University Background Patient registry for rare diseases become gradually popular to collect more information for medical research As the registration process is mostly on a paper basis an onlinebased registration system can be more effective and efficient. Since then the registries have provided information on incidence and patterns of cancer that in terms of quality and validity meet international standards In India the cancer registry perhaps is the only programme for reliable incidence and mortalit Comments Agreed Actions By Whom Target date Date Completion Improve Paramedic and Ambulance response times to emergency calls in the Dengie. The results of the 2013 survey indicate that 'The Eas Cancer Data Saves Lives. The Vital Role of Cancer Registrars . in the Fight against Cancer. 18 Million. . 1.5 million. . 67%. Cancer Registries. Statistics. Treatment strategies. Public health initiatives. Lively Pilot at Eskaton: Executive Summary mylively.com Overall healthGood / Very Good Pre-Trial Post-Trial 80% of Participating Connections report that the Lively trial sig Collaboration, Competition, or Confusion?. Christopher L. Bowlus, MD. Division of Gastroenterology and Hepatology. University of California Davis. Purposes of Patient Registries. Describe the Natural . Jim Griffin. griffin@onehouse.com. Vienna June 2013. S. pirit of discussion. Lincoln: If two people think the same about this, we don’t need one of you.. Dialogue: Not rules, absolutes or definitive findings.. Kenneth Gersing, MD. Anne Pariser, MD. NCATS, NIH. August 29, 2017. Outline. 2. GRDR History and Background. Demonstration project (2010-2013). Data mapping exercise (~2015-2017). Current status. Next steps. Apoyo. (PI: Fischer) and CASA (PI: Bekelman) research teams. People with Serious Illness: A Major Opportunity to Improve Value. High costs, poor quality of life in serious illness. Default provision of intensive treatments (intensive care unit, cardiopulmonary resuscitation, mechanical ventilation) regardless of patient preference. . . Starting nationwide and in our Hospital on May 1, 2017. Agenda. Project introduction. Project update and status. Your role. National Patient Experience Survey . – project introduction. . What is the NPE Survey and who will be asked to participate?. . Tracy O’Carroll, Manager, National Patient Experience Survey Programme. June . Boulger. , National Lead for Patient and Public Partnership, HSE . October 25, 2017 . . “You see the world differently by looking through a different lens; by seeing care through the eyes of patients”. Since 2004, prices of all medicines reimbursed by the Italian NHS are set through Negotiation procedure between AIFA & Pharma companies The parameters taken account are defined by CIPE Resolution n.3 Risk factors. Incidence. Survival. Mortality. Population Surveys. PBCRs. PBCRs. Vital statistics. By Cancer Type. By stage. Attributable Risk. Prevalence. DALYs. Associated Economic Costs. Cancer Control Measures. How are cancer statistics kept up to date?. Cancer Reporting. Example: . Dx. stage . II colon . cancer - . 2007 . Cancer has . metastasized to the . liver – 2009. H. ow . does the hospital and clinician . Institute of National Affairs & Bank of PNG. Ms Wei . Zhang, . The World Bank. Reserve Bank of India-OECD-World Bank . R. egional Conference on Financial Education . New Delhi, India. March 4-5 2013.