Dying Matters Week 2024 This year’s theme, ‘The
Description: Dying Matters Week 2024 This years theme, The way we talk about Dying Matters, focused on the language that we use, and conversations we have, around death and dying specifically between healthcare professionals and patients, their
Related Topics
Download Presentation
"Dying Matters Week 2024 This year’s theme, ‘The" is the property of its rightful owner. Permission is granted to download and print the materials on this website for personal, non-commercial use only, and to display it on your personal computer provided you do not modify the materials and that you retain all copyright notices contained in the materials. By downloading content from our website, you accept the terms of this agreement.
Presentation Transcript
slide1. Dying Matters Week
2024<br>
slide2. This year’s theme, ‘The way we talk about Dying Matters’, focused on the language that we use, and conversations we have, around death and dying – specifically between healthcare professionals and patients, their carers and their families.<br>
slide3. The Way We Talk About Dying Matters (youtube.com) Honest, timely conversations about death and dying are essential to good end of life care. Yet all too often barriers, including lack of confidence, taboos around discussing death, and confusion about who should be having these conversations mean patients, carers and families may not understand what is happening, or get all the information and support they need.<br>
slide4. What words do you use when someone has died? DIED Passed away Slipped away Resting in peace Took their last breath Went to a better place Shuffled off this mortal coil Gave up the ghost Shuck a 7 We lost them Six feet under Kicked the bucket Bit the dust Meet your maker Went to heaven Breathed his last Fallen asleep Entered eternal rest Left this world Passed Passed over Became an angel Breathed their last Popped their clogs<br>
slide5. 45% of people prefer direct language (e.g. ‘dying’, ‘die’) when talking about death and dying, whilst 33% prefer euphemistic language (e.g. ‘passed away’, ‘not going to make it’, ‘we can’t do any more’). Older people (+55) tended to prefer using more direct language to talk about terminal diagnoses and dying, while younger people (16-24) had a preference for euphemistic language.<br>
slide6. We have no workarounds for daunting conversations. Whether we like it or not, sometimes we have to take a deep breath and get into a conversation that we might have preferred to avoid.
Dr Kathryn Mannix<br>
slide7. 36% of people said that they were left with some uncertainty about the likelihood of their loved one dying after speaking with healthcare professionals.
62% of people felt that healthcare professionals communicated very well or quite well, during the final period of their loved one’s life.
Hospice UK<br>
slide8. 3 Questions to ask yourself that make difficult conversations about serious illness easier
Talking with your patients about their serious illness is not easy
We all have had that uncomfortable feeling of not knowing what to say or when to say it. Regardless of your role, ask yourself these three questions
. The next few slides are taken from the 35th Norfolk Palliative Care conference whose theme was Getting Your House in order and was held on the first national advance care planning day – 8th May 2024<br>
slide9. Question 1<br>
slide10. Question 2: What do you know?
Why this is important – rather than increasing distress and anxiety (as is often our worry), giving the right information at the right time, has the opposite effect
How to do this? – This is not about teaching a person day-to-day self-management strategies for their illness. This is about the big picture of what to expect. Start by asking: “What do you know or have been told about your illness?” Listen carefully to a person's answer as this will give you a sense of how much and what kind of information to offer. When providing information, share small chunks at a pace that makes sense for the person. Use non-technical language and check that the person understands.
What are the tasks? – When preparing, the tasks are to improve what the patient and substitute decision maker understand about the illness trajectory and what is expected to happen in the future. When deciding, the tasks are to assess for and address any information gaps to ensure the decision is informed.<br>
slide11. Question 3<br>
slide12. What you DO want What you DON’T want Who would speak for you Your legacy Barriers End of Life Care What matters most to you? Clare Fuller : Advance Care Planning: Getting Your House in Order Getting your house in order<br>
slide13. What you do want Bucket list Organ donation? What do you want to happen to you?
Your wishes and preferences Medical science<br>
slide14. What you don’t want Advance
Decision
to
Refuse
Treatment ReSPECT
(Recommended Summary Plan for Emergency Care and Treatment)
Do not attempt cardio-pulmonary resuscitation<br>
slide15. Who would speak for you Lasting Power of Attorney: Health & Welfare Lasting Power of
Attorney: Property &
Finance A Property and Affairs LPA can make decisions and take action for the person even if the person has capacity. The LPA needs to ensure either that they are working with the person’s agreement or that the person lacks capacity for that particular decision.
A Health and Welfare LPA can only make decisions if the person lacks capacity to make that particular decision.
The donor (the person giving the LPA) can limit the scope of the decisions to be made e.g., Ability to give life sustaining treatment decisions or not<br>
slide16. Your legacy How do you want to be remembered?
Will
Digital legacy Funeral plans
Making memories<br>
slide17. End of life care Last days of life
Last weeks of life
Last months of life<br>
slide18. These next couple of slides are again taken from the conference Hope for the Best, Plan for the Rest:
The story of the Waiting Room Revolution
Hsien Seow, PhD and Sammy Winemaker, MD
McMaster University, Canada<br>
slide20. So how do we do this?
These are taken from Dr Kathryn Mannix’s book Listen as she talks about connecting with empathy
Invite the person into the conversation
The conversation should be like a dance
Be curious, open minded and humble
Never use the phrase “At least …..”
Use the power of silence
Faced with a difficult conversation? 5 tips to connect with empathy | CBC Radio<br>
slide21. Now available in Barnsley!<br>
2024<br>
slide2. This year’s theme, ‘The way we talk about Dying Matters’, focused on the language that we use, and conversations we have, around death and dying – specifically between healthcare professionals and patients, their carers and their families.<br>
slide3. The Way We Talk About Dying Matters (youtube.com) Honest, timely conversations about death and dying are essential to good end of life care. Yet all too often barriers, including lack of confidence, taboos around discussing death, and confusion about who should be having these conversations mean patients, carers and families may not understand what is happening, or get all the information and support they need.<br>
slide4. What words do you use when someone has died? DIED Passed away Slipped away Resting in peace Took their last breath Went to a better place Shuffled off this mortal coil Gave up the ghost Shuck a 7 We lost them Six feet under Kicked the bucket Bit the dust Meet your maker Went to heaven Breathed his last Fallen asleep Entered eternal rest Left this world Passed Passed over Became an angel Breathed their last Popped their clogs<br>
slide5. 45% of people prefer direct language (e.g. ‘dying’, ‘die’) when talking about death and dying, whilst 33% prefer euphemistic language (e.g. ‘passed away’, ‘not going to make it’, ‘we can’t do any more’). Older people (+55) tended to prefer using more direct language to talk about terminal diagnoses and dying, while younger people (16-24) had a preference for euphemistic language.<br>
slide6. We have no workarounds for daunting conversations. Whether we like it or not, sometimes we have to take a deep breath and get into a conversation that we might have preferred to avoid.
Dr Kathryn Mannix<br>
slide7. 36% of people said that they were left with some uncertainty about the likelihood of their loved one dying after speaking with healthcare professionals.
62% of people felt that healthcare professionals communicated very well or quite well, during the final period of their loved one’s life.
Hospice UK<br>
slide8. 3 Questions to ask yourself that make difficult conversations about serious illness easier
Talking with your patients about their serious illness is not easy
We all have had that uncomfortable feeling of not knowing what to say or when to say it. Regardless of your role, ask yourself these three questions
. The next few slides are taken from the 35th Norfolk Palliative Care conference whose theme was Getting Your House in order and was held on the first national advance care planning day – 8th May 2024<br>
slide9. Question 1<br>
slide10. Question 2: What do you know?
Why this is important – rather than increasing distress and anxiety (as is often our worry), giving the right information at the right time, has the opposite effect
How to do this? – This is not about teaching a person day-to-day self-management strategies for their illness. This is about the big picture of what to expect. Start by asking: “What do you know or have been told about your illness?” Listen carefully to a person's answer as this will give you a sense of how much and what kind of information to offer. When providing information, share small chunks at a pace that makes sense for the person. Use non-technical language and check that the person understands.
What are the tasks? – When preparing, the tasks are to improve what the patient and substitute decision maker understand about the illness trajectory and what is expected to happen in the future. When deciding, the tasks are to assess for and address any information gaps to ensure the decision is informed.<br>
slide11. Question 3<br>
slide12. What you DO want What you DON’T want Who would speak for you Your legacy Barriers End of Life Care What matters most to you? Clare Fuller : Advance Care Planning: Getting Your House in Order Getting your house in order<br>
slide13. What you do want Bucket list Organ donation? What do you want to happen to you?
Your wishes and preferences Medical science<br>
slide14. What you don’t want Advance
Decision
to
Refuse
Treatment ReSPECT
(Recommended Summary Plan for Emergency Care and Treatment)
Do not attempt cardio-pulmonary resuscitation<br>
slide15. Who would speak for you Lasting Power of Attorney: Health & Welfare Lasting Power of
Attorney: Property &
Finance A Property and Affairs LPA can make decisions and take action for the person even if the person has capacity. The LPA needs to ensure either that they are working with the person’s agreement or that the person lacks capacity for that particular decision.
A Health and Welfare LPA can only make decisions if the person lacks capacity to make that particular decision.
The donor (the person giving the LPA) can limit the scope of the decisions to be made e.g., Ability to give life sustaining treatment decisions or not<br>
slide16. Your legacy How do you want to be remembered?
Will
Digital legacy Funeral plans
Making memories<br>
slide17. End of life care Last days of life
Last weeks of life
Last months of life<br>
slide18. These next couple of slides are again taken from the conference Hope for the Best, Plan for the Rest:
The story of the Waiting Room Revolution
Hsien Seow, PhD and Sammy Winemaker, MD
McMaster University, Canada<br>
slide20. So how do we do this?
These are taken from Dr Kathryn Mannix’s book Listen as she talks about connecting with empathy
Invite the person into the conversation
The conversation should be like a dance
Be curious, open minded and humble
Never use the phrase “At least …..”
Use the power of silence
Faced with a difficult conversation? 5 tips to connect with empathy | CBC Radio<br>
slide21. Now available in Barnsley!<br>