Newborn Hearing Screening Results and Diagnostic Reports Exchange Project - PowerPoint Presentation

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Newborn Hearing Screening Results and Diagnostic Reports Exchange Project

Utah Digital Health Commission Meeting

March 3, 2016

Project Purpose

To expand the use of the existing state designated clinical Health Information Exchange (cHIE) to improve the care coordination for newborn hearing screening and follow-up results in the state of Utah

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Project Partners

Utah Health Information Network (UHIN) – (cHIE)

Intermountain Healthcare

Child Health Advanced Records Management (CHARM) ProgramUtah Early Hearing Detection and Intervention (EHDI) Program – (HiTrack)

Multidimensional Software Creations (MDSC)

Center for Health Data and Informatics

Center for Disease Control – EHDI Program

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Background

National Early Hearing Detection and Intervention (EHDI) 1-3- 6 Goals

Screen for hearing loss before

1

month of age

Diagnose hearing loss before

3

months of age

Enroll a child with hearing loss in Early Intervention before

6 months

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Background (continued)

51,873 births in Utah in 2013

99% screened for hearing loss, 98% prior to 1 month

Of those screened, 492 did not pass

13.2 % did not complete further testing and were lost to follow-up

77.9% diagnosed before 3 months

77.3% children confirmed as Deaf/Hard of Hearing (D/HH) were enrolled in Early Intervention before 6 months

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Objectives/Use Cases

Use Case 1

Send

clinical reports from

Intermountain’s

EHR through the cHIE's

Direct Service to deliver diagnostic Auditory Brainstem Response (ABR) results and Cytomegalovirus (CMV) results to

the EHDI

program

Use Case 2Send

hearing screening results from

EHDI's

HiTrack system through the UDOH CHARM system and

interoperability

Gateway

to the cHIE to Intermountain providersBoth use cases apply to the statewide pediatric population up to 6 years old ( ̴ 300,000 children)

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Project Metrics

Use

Case 1 and 2

:

Connections made between public health (EHDI) and other entities (Intermountain and UHIN/cHIE) = 2

Use Case 1

:

Intermountain will track and determine the number of diagnostic reports

sent

to EHDI via Direct

EHDI will track and determine the number of diagnostic reports

received

from Intermountain

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Project Metrics (Continued)

Use

Case 2

:

UDOH, UHIN, Intermountain will track and determine the

number of hearing screening results/messages sent

and received between each entity

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Use Cases Implemented

EHDI program

will be

using Direct Service to get diagnostic

ABR and CMV test

results from Intermountain and

share outcomes/lessons learned

Intermountain will be utilizing the

newborn hearing

results from cHIE in their EHR

and

share

outcomes/lessons learned

Outcomes will show improvement in hearing screening follow-up and the EHDI Program’s 1-3-6 goals

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Complex nature of finding common codes to enable the transfer of ABR and CMV lab results between Intermountain and the EHDI Program

-

The UDOH and Intermountain worked together to gather national resources, and Intermountain matched EHDI lab result codes with their lab and LOINC* codes to resolve this challenge

.

*LOINC =

Logical Observation

I

dentifiers

N

ames and Codes is a database and universal standard for identifying medical laboratory observations.

Challenges

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Successes

Significant

progress

made

with

Use Case 1 – ahead of schedule

Partners

committed; Buy-in

from beginning

Good

communication/rapport

Meet

regularly to

move tasks forward

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Christine Perfili, MBA, B.S.

Program Manager, Child Health Advanced Records Management (CHARM)

ONC HIE Grant Project Director

Children with Special Healthcare Needs Bureau

Utah Department of Health

cperfili@utah.gov

801-584-8275

Stephanie McVicar,

Au.D., CCC-A

Director, Utah

Early Hearing Detection and Intervention (EHDI) 

Cytomegalovirus Public Health Initiative

Children

with Special

Healthcare Needs Bureau

Utah Department of Health

smcvicar@utah.gov

(

801) 584-8218

Please

Contact

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