Use of the Manitoba Population Research Data Repository at MCHP Charles Burchill December 9 2016 The University of Manitoba campuses are located on original lands of Anishinaabeg Cree OjiCree Dakota and Dene peoples and on the homeland of the Métis Nation ID: 931105
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Slide1
Social and Demographic Research Data Workshop
Use of the Manitoba Population Research Data Repository at MCHP
Charles Burchill, December 9, 2016
Slide2The University of Manitoba campuses are located on original lands of
Anishinaabeg
, Cree, Oji-Cree, Dakota, and Dene peoples, and on the homeland of the Métis Nation.We respect the Treaties that were made on these territories, we acknowledge the harms and mistakes of the past, and we dedicate ourselves to move forward in partnership with Indigenous communities in a spirit of reconciliation and collaboration.
Traditional Territories Acknowledgement
Slide3MCHP
is a research unit within the Department of Community Health
Sciences. Houses the Manitoba Population Data Repository – social services, income support, housing, education, population demographics.
Founded 1991
Currently supports over 200 active research projects, with over 130 publications/presentations last yearThe Centre involved in teaching and graduate student support, with 20 courses, lectures or tutorials delivered, and 54 graduate students supervised in 2015/16.
MCHP Home
U of M Research Unit
Annual Reports
Slide4Slide5The Centre is also very involved in
teaching and graduate student support,
with
20 courses, lectures or
tutoritals delivered to the Rady Faculty of Community Health Sciences, and 54 graduate students supervised in 2015/16.The Evelyn Shapiro Award for Health Services Research was established to assist graduate students access the costs of data access.
Annual Reports
http://webapps.cc.umanitoba.ca/gradawards/index.asp?WCI=SearchForm&WCE=browse&keywords=&criteria=any&category=0&citizen=0&range=0-1000000&tenable=0&byResearch=on&byAward=on&byEligibility=on&id=3327&letter=S
Teaching and Students
Slide6MCHP is a research centre of excellence within the Department of Community Health Sciences,
Max
Rady College of Medicine at the University of Manitoba that conducts world class population-based research
on health services, population and public health, and the social determinants of health. MCHP develops and maintains the comprehensive population-based data repository on behalf of the Province of Manitoba for use by the local, national and international research community. MCHP promotes a collaborative environment to create, disseminate and
apply its research.
The work of MCHP supports
the
development of policy, programs and services that maintain and
improve
the health of Manitobans.
Mission
Slide7DeliverablesFive major projects annually (deliverables) Knowledge translation through RHA, WRHA, MHSAL days
Child and Family Services Interventions and Educational Outcomes, Child and Family Services Interventions and Justice System Involvement, Living in social housing
How are Manitoba’s Children Doing (In Care, Education, Assistance)Transitions (18-21) to adult, social servicesPAX (Good Behavior Game, outcomes)Research ProjectsResearcher driven & funded projectsCost recovery – not for profit
PATHS
Youth violencePublic Housing and Residential MobilityResearch at MCHPResearch at MCHPDeliverables
Slide8MCHP Houses the De-Identified
Manitoba Population Research
Data Repository
Education
Family Services
Income Assistance
Healthy Child MB
Social Housing
Justice
Families First
EDI
K to Grade 12
Post-Secondary (UofM)
Census Data at Area Level
Hospital
Physician Services
Nursing Home
Home Care
Immunization
Vital Statistics
Emergency Department
Clinical
Health Surveys
Medical Laboratory
CancerCare
ICU
FASD
Pediatric Diabetes
Cardiac Surgery
Pharmaceuticals
Population-Based Registry
Hospital
Physician Services
Nursing Home
Home Care
Immunization
Vital Statistics
Emergency Department
Clinical
Health Surveys
Medical Laboratory
CancerCare
ICU
FASD
Pediatric Diabetes
Cardiac Surgery
Pharmaceuticals
Slide9Represents whole Manitoba Population
Data are
installed/updated after year end files are closedData are
de-identified
with a common encrypted IDLinkable – but not maintained in a linked format.Can be used only for approved research projectsScope and Coverage
Repository Home
Slide10http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html
Slide1111
Data Information
http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html
Slide1212
Data Information
Courts (CCAIN)
http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html
Slide13Database Descriptions - External
Database Name
Source AgencyType
Purpose
Scope Data Collection MethodSizeData LevelData Years Data HighlightsAccess RequirementsMore Information Revision Date
Repository Home
http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html
Slide14Repository Data
Repository data are not ‘owned’ by MCHP but are housed under one or more Data Sharing Agreements
Repository Home
Slide15Slide16Research Tools – Concepts and Glossary
Link to Site
Slide17Use of Repository
Feasibility Review
Research Proposal
Contracts
Student ProjectsApprovals
REBHIPC
Provider (Data List)
Researcher AgreementAnalyst/Data support or RAS
Analytics and use of line level on MCHP sys.PublicationsStatistical (anonymous) output
Project Proposal Review
and Approval
Costing and Feasibility (existing Policy and Procedure
Approved
Denied
Accreditation (New)
Project Start Notification
Project Provisioning
(new process)
Training/
Orientation (project
specific)
Completed
Additional Training Consultation
Data Analysis
Vetting/Output Request
Project Completion
Project Archival
Audit
HIPC
REB
RA
Others
http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/access.html
Slide18Provisioning & Analysis
Project Provisioning
Name of projectAssign:Space on system
Account - complete form (if required)
Access permissionsSystem and Access orientationAnalysisCompleted by MCHP staff or identified external analystDone on the MCHP computer system using SASResults vetted and transferred
Slide19Publication/Presentation
Disclosure
Requirements:Tables and Figures must represent aggregate data
Confidentiality and Consistency
Acknowledgements must include HIPC approval number and:The authors acknowledge the Manitoba Centre for Health Policy for use of data contained in the Population Health Research Data Repository under project # (HIPC#). The results and conclusions are those of the authors and no official endorsement by the Manitoba Centre for Health Policy, Manitoba Health, or other data providers is intended or should be inferred. Data used in this study are from the Population Health Research Data Repository housed at the Manitoba Centre for Health Policy, University of Manitoba and were derived from data provided by Manitoba Health and (name other data providers).
Slide20MCHP Provided Support
Review of proposals for feasibility and cost estimates (this step is required prior to submissions to HIPC)
Examples and Templates available for HIPC, HREBAssistance with approval letters to data providers for ongoing repository dataSystem and data orientation
Data documentation
Space if necessary, billed monthly on a cost recovery basis
Slide21MCHP Provided Support Remote Access Sites
T155 (P001)
Department of Family Social Sciences (CHS)College of PharmacyCHIVaccine & Drug Evaluation Centre
WRHA
Seven Oaks General HospitalSt. Boniface General Hospital
Slide22Analytic Support
MCHP Analyst completes required analysis based on input and direction from researcher
ORData Extraction completed by MCHP analyst, researcher or external analyst completes analysisAnalytic and Data Support are billed on a cost recovery basisSAS is the only analytic software approved for use with the RepositorySAS training
SAS Canada Home
Slide23System Support
System Access (MCHP offices/RAS)
Backup/RestoreNote: restore of data is only possible for active projects (current HREB approval)Providing system space and data access for project
Slide24Timeline and Cost?
Time to Conduct – Feasibility to approval.
Expect 4 months
Costs – Dependent on project scope
Feasibility review provides estimate
Cost recovery for MCHP\
Cost Drivers
MCHP Analyst doing analysis, RAS useScope of Project and complexity of data/analytics
Graduate Student
Private Sector funding
Change in plans
Slide253 weeks
Proposal/
Feasibility Review
MCHP Approval and Estimate
Contract/Private Funding
Researcher Agreements
2 weeks
2 weeks
4 weeks, but time can vary
12 weeks +
May be submitted concurrently
Provision of system resources
1 week
? Weeks/months/years
4 weeks
HIPC, HREB, other approvals
Research/
Analysis
Publication/
Presentation
Slide26“You are not the only expert… information flow is a two-way street”it takes a period of friendship, then courtship, then engagement, then partnership!
respect the knowledge base & perspectives of your partners… you can learn from each other
knowledge translation takes place all along the way, not just at the end of the researchclinicians have insight into the data that can enhance our understanding.
Need to Know Team
Lessons Learned … KT
Slide27Thank You /
Questions
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centres
/
mchp
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mchp.umanitoba
twitter.com/
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(@
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)