Carrie McAdamMarx PhD RPh Dillon Savard MD Research Project Updates College of Public HealthCheryl Beseler PhD College of PharmacyCarrie McAdamMarx PhD RPh College of MedicineMarcy Vandament PhD ID: 1047733
Download Presentation The PPT/PDF document "Agenda Introduction and Updates" is the property of its rightful owner. Permission is granted to download and print the materials on this web site for personal, non-commercial use only, and to display it on your personal computer provided you do not modify the materials and that you retain all copyright notices contained in the materials. By downloading content from our website, you accept the terms of this agreement.
1. AgendaIntroduction and UpdatesCarrie McAdam-Marx, Ph.D., RPhDillon Savard, MDResearch Project UpdatesCollege of Public Health-Cheryl Beseler, Ph.D.College of Pharmacy-Carrie McAdam-Marx, Ph.D., RPhCollege of Medicine-Marcy Vandament, Ph.D.Great Plains IDeA-CTR Clinical Research RegistryMembership and Network UpdatesPlanning the 2022 Members MeetingBoard Member Compensation
2. Introductions and UpdatesNew Board Member: Carrie McAdam-Marx, Ph.D., RPhPast Board Member: Dillon Savard, MD
3. Roles and ResponsibilitiesAdministrative: Regularly review the vision and mission of the PBRNDevelop and implement policies that are consistent with the PBRN vision and missionProvide governance for the PBRN, including activities to strengthen the relationships between network sitesHold quarterly meetings, or more frequently as determined by the BoardDevelop performance measures to monitor network successes and areas of improvement, for example:Engagement Indicators:Attendance/participation at PBRN meetingsProportion of sites involved in researchNumber of registered sites/clinicsCounties representedResearch and Practice Outcomes:Practice changes as a result of PBRN researchNumber of active research projectsNumber of extramural proposals submitted and acceptedRate, number and representativeness of subjects enrolled in studiesCompleted projectsRegional, national, and international presentationsPeer-reviewed Publications
4. Roles and ResponsibilitiesResearch:Facilitate the collaborative development of a PBRN research agendaEnhance access to research, champion studies, and promote research through clinicsSolicit site-driven research in line with the GP IDeA-CTR Health Priorities List Prioritize ideas and projects that are external to the network (e.g., UNMC investigators)Community Engagement:Develop strategies for clinic engagement and expansion of the networkFacilitate clinic-community partnerships to advance the PBRN vision and missionMonitor membership and participation across sitesDisseminate research findings through clinics and community partner sites
5. Vision and MissionVision: A dedicated network of clinics, clinicians, and investigators collaborating to overcome healthcare challenges in primary care across the Great Plains. The Mission of the Great Plains Primary Care Practice-Based Research Network is to engage clinicians, investigators and patients through research, collaboration, and community involvement to improve the health and quality of life in the Great Plains.
6. Research Project UpdatesCollege of Public Health-Cheryl Beseler, Ph.D.College of Pharmacy-Carrie McAdam-Marx, Ph.D., RPhCollege of Medicine-Marcy Vandament, Ph.D.Great Plains Clinical Research Registry
7. Cheryl Beseler, Ph.D.
8. National Institutes of Health R01 ProjectSocial Isolation in Nebraska: Pathways to HealthPrincipal Investigators: Shinobu Watanabe-Galloway PhD and Ariane Rung PhDco-PIs: Edward Peters PhD, Anna Knight PhD, Cheryl Beseler PhD
9. Objective of NIH R01 Project
10. Specific Aims
11. Recruitment GoalsThe University of Nebraska Lincoln Bureau of Sociological Research (BOSR) will administer the survey by sending out a paper-based survey to 800 primary care patients aged 45 years or older.Combining mailed surveys with telephone interview follow-up, we expect to achieve a sample size of 400; due to the costs of epigenetic analysis, we expect to have accelerated aging data on 300 participants
12. Assistance Requested from PBRNAssistance will be needed from clinics from which patients will be recruited for this study.Help with patient recruitment including a letter of introduction to the study from the participating clinic.Electronic health record data retrieval in year 4 of the study to ascertain medical diagnoses for diabetes, hypertension and co-morbidities.
13. Carrie McAdam-Marx, Ph.D., RPh
14. Marcy Vandament, Ph.D.
15. What is neuropsychology?Neuropsychology is a sub-specialty of psychology. Neuropsychologists are primarily interested in how a medical condition effects cognition (e.g., IQ, memory, executive functioning)Areas of Interest in SpecialtyEpilepsyHEMOCCardiac ConditionsGenetic ConditionsIn Utero exposure to substances (e.g, FAS)Experience with FAS PopulationAbout four years experience in a medical setting working with patients diagnosed with FAS and/or those who have had exposure to drugsPatient population often classified as “behavior problems” because there is not a strong knowledge of the unique needs of the populationNeuropsychological evaluation provides a comprehensive report that discusses patient strengths and weaknesses along with recommendation for home and school environments
16. Collaboration with PBRN SitesNeeds AssessmentTo understand prevalence rates in Nebraska (and potentially surrounding states) The CDC reports FAS rates as 0.2 to 1.5 per 1,000 live birthsRates are highest in states with high alcohol usage among women of childbearing age, Nebraska is amongst the highestResources (Where are the gaps in information?)What interventions are available? What additional evaluations are warranted following a diagnosis?How can school help the child succeed?How can the child be helped in the home environment?Future DirectionsInformation gathered from the Needs Assessment will help to understand where the “gaps” are and guide future research
17. Great Plains IDeA-CTR Clinical Research Registry
18. Great Plains IDeA-CTR Clinical Research Registry
19. Membership and Network UpdatesMembership:70 sitesIdentified 19 primary care Community Connect SitesResources to increase research productivityCollege of MedicineCollege of Pharmacy Sharing best-practicesUniversity of Nevada, Reno School of Medicine2. Brown University Advance-CTR
20.
21. Future DirectionsExpand access to state/national EHRFeasibility metrics for grantsUse EHR/Big Data to determine prevalence Improve recruitment of rural populations into researchMonitor outcomes of quality improvement researchLink to regional health prioritiesAdvance interoperability
22. Advancing Interoperability Assisting community health systems in achieving meaningful use Expanding access to resources across member sitesEnable practice-level quality improvement and facilitation of surveillance tools for underserved populationsSupporting pragmatic research and patient-centered outcomesAdvance culture and idea sharing across the Great PlainsInnovative ways of analyzing real world data – save money over clinical trials
23. Member MeetingSummer 2022
24. Board CompensationSend Emily:NameAddressPhone NumberEmail addressW9