Who Counts? . What Counts?. Stacy Clifford . Simplican. Senior Lecturer. Women’s and Gender Studies. Vanderbilt University. Nashville, Tennessee, USA. email@example.com. Social Inclusion: Core Theme of DOCTRID & Disability Rights. ID: 612594
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Social Inclusion: Who Counts? What Counts?
Women’s and Gender Studies
Nashville, Tennessee, USA
Social Inclusion: Core Theme of DOCTRID & Disability Rights
“The Second Decade of the Convention on the Rights of Persons with Disabilities: Inclusion and full participation of persons with disabilities and their representative organizations in the implementation of the Convention”Slide3
But what is Social Inclusion?
Defining social inclusion of people with intellectual and developmental disabilitiesCo-authors Geraldine Leader, John Kosciulek, and Michael Leahy
Defining Social Inclusion
Specifies two domains of social inclusion
Adds precision to conceptualization and measurementGuides future research agenda
Who Counts? What Counts?
Why do we value social inclusion?
Does belonging better capture our values?
Co-author Geraldine LeaderSlide7
Social Inclusion: What Counts?
Prioritize settings in the community with nondisabled members
Avoid counting family members, staff, or other people with IDD
Mainstream settings only
Recognizes any inclusive activity that provides people with IDD with a sense of belonging
Entails being accepted as an individual and experiencing a valued social roleSlide8
Social Inclusion: Who Counts?
People with mild to moderate IDD more likely to be subject of social inclusion research
Unanswered questions about how to measure and understand the social inclusion of people with more complex and challenging IDDSlide9
Social Inclusion: How to Count?
Number of friends and family
Number of neighbors known by name
Number of weekly visitors
indicators fail to tell us about the
How does technology change what, who, and how we count social inclusion?
Social media: benefit or risk to social inclusion?
Is a ‘friend’ on Facebook the same as a neighbor?
How to count?
Can technology improve how we count inclusion?Slide11
What counts for service providers & staff?
Co-authors, Carolyn Shivers, June Chen, and
Promises of technology
“[We need] technology to improve wider systems of communications and consultations with service users, whether for service users who have difficulties with communications, or Twitter or Facebook.”
“If they’re living in the community housing, and they need to come in and out of the door more easily. Maybe because they can’t manage to find their keys.”
“I would think definitely supporting a person to do things for themselves. Their own independence. Their own self-development. Definitely.”
Save staff time
“I was thinking of some sort of software that, with just a click of a button, all the information about a client is there, rather than going to a filing cabinet.”Slide13
Elements of good design
Controlled by user
Easy to use
Right fit for person and organization
Risks and limits of technology
“He looked quite vulnerable there too, with his phone.”
Diversity of service users
“Those clients, most of them have a moderate disability, whereas, in the units, they are more severe.”
“In the children and adult population, their next of kin or relatives are 70 years of age and they’ve never picked up an iPad.”
“We need to balance [technology], or bring it around with, the rights of the person and the privacy of the person, and
the whole safety of the person.”Slide15
Risks and limits of technology
Lack of skills or time
“There would be quite a number of [staff] that wouldn’t be confident in using basic programs, like even Word programs, let alone anything more advanced.”
“[In our service], I want to know everything about everything, but in actual fact, we know nothing about nothing.”
“Finance will always be used as the first obstacle.”
“I know a lot of times staff members are afraid and again, the big thing is cost. If something is expensive then they’re even more afraid that they might break it.”Slide16
Future of Inclusion and Technology
People with IDD continue to face high rates of social exclusion
any are stuck in a digital divide
How can we – practitioners, researchers, policymakers, family members, and self-advocates – use technology to enhance inclusion?Slide17
Inclusion and belonging both important
Belonging is important, but it cannot replace social inclusion as a concept
Research should remain open to inclusive spaces that are marked by: