Patient Navigation Center Disease Impact Overall Report Methodology amp Background The Patient Navigation Center served 2176 unique individuals during its first six months of operation Patient ID: 769710
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Patient Navigation Center Disease Impact Overall Report
Methodology & Background The Patient Navigation Center served 2,176 unique individuals during its first six months of operation Patient Navigators assisted patients through 5,252 interactions, comprising phone calls, emails, texts, website live chats, and Skype calls. The Patient Navigation Center caseload has grown 328% since opening in February 2016 Health education inquiries have grown 315% compared to the same time period during the previous year (2015 )
Gender N= 2,175
Language Spoken N=1,205
Ethnicity n=147
Age N=654
Location: US N=1,310 Top 10 States:
Location: US
Location: International N=2,175 9% of inquiries are international Top 10 non-US countries
Location: international
Psoriasis vs Psoriatic Arthritis N=805
Severity: Psoriasis N=590
Severity: Psoriatic Arthritis N=398
Current Treatment N=1,114
Comorbidities n=786
Education Case Attributes
Impact of Psoriatic Disease on Everyday Life My Psoriatic Disease Affects My Overall Emotional Well-Being N=387
Impact of Psoriatic Disease on Everyday Life I Feel Self-Conscious with Regards to My Psoriatic Disease N=389
Impact of Psoriatic Disease on Everyday Life I Have Physical Irritation From My Psoriatic Disease N=388
Satisfaction with Care and Treatment I am Satisfied with the Effectiveness of My Medication N=193
Satisfaction with Care and Treatment I am Satisfied with the Out-of-Pocket Costs of My Treatment N=383
Satisfaction with Care and Treatment I am Satisfied with the Care I Receive From My Doctor N=393
Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriasis N=390
Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriatic Arthritis N=365
Patient Engagement and Feelings of Empowerment I Feel Confident in My Ability to Maintain a Healthy Lifestyle and Manage My Disease N=393
Patient Engagement and Feelings of Empowerment I Have all the Information I Need to Make the Best Decisions about My Healthcare N=390
Patient Engagement and Feelings of Empowerment I Have the Ability to Participate in Getting the Best Care N=388
Patient Engagement and Feelings of Empowerment I Feel Ownership and Responsibility for My Health N=386
Patient Treatment Goals
Stories from the Navigation Center Emily Newly diagnosed with guttate psoriasis Under a lot of stress In working with her Navigator, we were able to: Connect her with a new doctor closer to home for her phototherapy appointments C oached her through ways of making her phototherapy trips easier (travel with her dog, shopping, finding a park to walk, etc.). Provided her with disease management and treatment information C onnected her with a volunteer in Psoriasis One to One
Stories from the Navigation Center Beth Contacted NPF seeking help in finding a rheumatologist Has had significant inflammation and pain in her connective tissue and some nail changes in finger and toe nails. Was diagnosed several years ago with PsA , but recently had the diagnosis removed and treatment suspended In working with her Navigator, wee were able to: Help her locate a new rheumatologist who reinstated her psoriatic arthritis diagnosis and created a long-term treatment plan for her She is very happy with her new care team and the level of attention they provide to her
Stories from the Navigation Center Sally Parent of a teen with psoriasis Unsatisfied with current treatment Suspected psoriatic arthritis In working with her Navigator, we were able to: Connect her with additional specialists in her area Provide information about other treatment options and combination treatment plans Provide her with information about how to get involved with local events in her area to meet other teens living with psoriasis
Stories from the Navigation Center John Has severe genital psoriasis Feeling isolated, discouraged with treatment options Contacted the Navigation Center for support In working with his Navigator, we were able to: Connect him with another volunteer living with genital psoriasis through the One to One support program Help prepare him to discuss other treatment options with his dermatologist Coached him through stress management strategies and positive ways to cope
Stories from the Navigation Center Clara Has had severe psoriasis all of her life Negative experiences with health care providers in the past have led to fear and ambivalence about seeking treatment Currently not treating or seeing a health care provider In working with her Navigator, we were able to: Utilize coaching and motivational interviewing strategies to help Clara overcome her anxiety about seeking medical care Locate a qualified specialist in her area Clara is now seeing a dermatologist for the first time in many years and is optimistic about treatment