PDF-(BOOK)-Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action

Sickle cell disease SCD is a genetic condition that affects approximately 100000 people in the United States and millions more globally Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo Some adults with SCD report reluctance to use health care services unless as a last resort due to the racism and discrimination they face in the health care system Additionally many aspects of SCD are inadequately studied understood and addressedAddressing Sickle Cell Disease examines the epidemiology health outcomes genetic implications and societal factors associated with SCD and sickle cell trait SCT This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs policies and research It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems barriers in the healthcare sector associated with SCD and SCT and the role of patient advocacy and community engagement groups. EXAMINING PREVALENCE OF TOBACCO,. ALCOHOL, ILLICIT DRUG USE IN. ADULTS WITH SICKLE CELL ANEMIA. Catherine A. Seamon, Darlene T. Allen, . James G. Taylor VI, Jonathan Wilson, Gregory J. Kato . Disclosures. By: Jarrett . Devose. , Jordan Patten, and Michael Lamb. Sickle cell anemia is a disease passed down through your family, it causes red blood cells to form in a odd crescent shape. Red blood cells are usually shaped like a . By Jessica Sambo. Drepanocytes . Most common of sickle cell diseases. Autosomal recessive genetic disorder. Hemoglobin S. First in Africa. Discovered in US in 1910. “cells in the shape of sickles”. Presenter: Bridget H. Wilson, Ph.D., MS, RN. Introduction. Sickle cell disease (SCD) pain continues to emerge among adolescents. Over 98,000 individuals are believed to have SCD within the United States. . Katie Coltharp and Mariela Saenz. Names of Disorder. HbS. disease. Hemoglobin S disease. Hemoglobin SS disease. Sickling. disorder due to hemoglobin S. Sickle cell disease (broad term). Sickle cell disorders (broad group of conditions). the Emergency Physician and Nurse. Sickle Cell Pain. Carlton Haywood Jr., . PhD, . MA. Core . Faculty, the Johns Hopkins Berman Institute of Bioethics. Assistant Professor, The Johns Hopkins School of Medicine. Gary Strokosch, MD. Jane Litvin, MS. Introduction. History of . sickle cell disease . (SCD). Present in Africa for at least . 5,000. . years. 1910-. . Discovered in US. Walter Clement Noel – dental student from Grenada studying in Chicago. . Sickle Cell Trait. (Hereditary Condition) . Red blood cells (RBC’s) are normally round, circular or disc shaped.. RBC’s have hemoglobin component (helps carry oxygen) and platelets (helps in clotting). What is the most common genetic disorder in the United States?. Background . Inheritance. Pathophysiology. Diagnostic . testing. Prognosis. Management of acute illness. Long-term management. Treatment options. the Emergency Physician and Nurse. Epidemiology, Genetics, Pathophysiology. . Paula Tanabe. , PhD, RN, FAEN, FAAN. Associate Professor. Duke University, Schools of Nursing and Medicine. Objectives. Abeer. . Anwer. Ahmed. Sickle cell disease is a group of . haemoglobin. disorders . resulting from . the inheritance of the sickle β‐. globin. gene. . Sickle cell disease (SCD) is . an. . autosomal. Disease Education 5/17 Care of patients with sickle cell disease for primary care providers and emergency room personnel Table of Contents Chapter 1: Background About Sickle Cell Disease and Making t October 11, 2023. Jennifer Colozza, PharmD. Clinical Pharmacist. MO HealthNet Division. During . at least one regularly scheduled meeting each calendar year, the advisory council on rare diseases and personalized . comms toolkit. What is the campaign?. Overview . NHS England and NHS Improvement is continuing it’s Sickle Cell awareness campaign ahead of World Sickle Cell Day 2023.. Objectives/Aims. The campaign, which is part of a bigger drive to improve sickle cell care across the NHS, aims to increase awareness of the key signs and symptoms of a Sickle Cell crisis, particularly among urgent emergency care staff and those living with the condition and their carers..