Assistant Professor February 27 2019 An Integrated SelfManagement Intervention for Adolescents with Polycystic Ovary Syndrome Mission of the School of Nursing SON Research at the SON is designed to improve the health of underserved vulnerable and understudied populations ID: 1045286
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1. Cara C. Young, PhD, RN, FNP-CAssistant ProfessorFebruary 27, 2019An Integrated Self-Management Intervention for Adolescents with Polycystic Ovary Syndrome
2. Mission of the School of Nursing (SON)Research at the SON is designed to improve the health of underserved, vulnerable, and under-studied populations. This approach supports the idea that nursing research underpins graduate education and advances the science of health promotion and disease prevention.
3. Background & RationalePCOS affects 7-18% of reproductive-age women (manifests during adolescence)Associated with multiple morbiditiesOften distressing physical manifestationsAdverse impact on mental health, which in turn may impact self-management
4. Study Design & PopulationStudy DesignPhase 1: Series of focus groups to explore self-management and develop a mindfulness-based healthy lifestyle intervention Phase 2: Pilot RCT testing Project WOW vs Enhanced Usual Care ControlPopulationPhase 1: Adolescents (14-18 years) with PCOS and parents of adolescents with PCOSPhase 2: Adolescents (14-18 years) with PCOS, OR (obesity AND secondary amenorrhea), OR (excessive and frequent menstruation)
5. Lessons LearnedFocus groups provided important insights to both individual and family self-management of PCOS & significant contribution to final interventionFocus on health promotion vs. weight loss (Project Working to Optimize Wellness: Project WOW)Inclusion of sleep as a primary intervention targetDesign change necessary due to focus group participants requesting to be in the interventionUsing mindfulness as a foundation of paying attention to their thoughts and current health behaviors with non-judgment and self-compassion has been highly acceptable to participants (and contributed to health behavior change and improved psychological well-being).
6. ChallengesNeed for bilingual staff and materials from the early stagesClinic-based recruitment inefficient for group-based interventionsScheduling of group interventions challengingRecruitment methods missing many vulnerable adolescents (e.g., undiagnosed, lack of access)
7. Ways of Addressing ChallengesRequest necessary resources up frontBe creative and plan for as varied of recruitment methods as possibleAlternate intervention delivery mechanismsUtilizing technology platforms for delivery may not be ideal, but…
8. Voltaire: “The best is the enemy of the good.Confucius: “Better a diamond with a flaw than a pebble without.”Shakespeare: “Striving to better, oft we mar what’s well.”Don’t let the perfect be the enemy of the good
9. THANK YOU