June 11 2018 Hurricane Preparedness Webinar Panel Where to Begin Jennifer Reidell LCSW Mayo Clinic Jacksonville Managing Before During and After the Storm Angelica Gicalone OTRL Mayo Clinic Jacksonville ID: 920404
Download Presentation The PPT/PDF document "Hurricane Preparedness Webinar" is the property of its rightful owner. Permission is granted to download and print the materials on this web site for personal, non-commercial use only, and to display it on your personal computer provided you do not modify the materials and that you retain all copyright notices contained in the materials. By downloading content from our website, you accept the terms of this agreement.
Slide1
Hurricane Preparedness WebinarJune 11, 2018
Slide2Hurricane Preparedness WebinarPanelWhere to BeginJennifer Reidell, LCSW, Mayo Clinic, Jacksonville
Managing Before, During, and After the StormAngelica Gicalone, OTR/L, Mayo Clinic, Jacksonville
Don’t Get Stuck Out of Breath
Michael Reeser, RRT, Millennium Respiratory
Communication EssentialsWendy Olsen, CCC-SLP, ALS Association Florida ChapterDon’t Forget About FoodJeanne Struve, Registered Dietician/Nutritionist, Lee Health, Fort Myers
2
Slide3Where to Begin
Hurricane Preparedness June 11, 2018
Presented by: Jennifer Reidell, LCSW
Mayo Clinic Social Work
Slide4Safety Plan OptionsPeople with ALS and their caregivers have special circumstances to think about during hurricane season. It is very important that you create a plan before every hurricane season so that you can safely evacuate or shelter in place.
When making a plan, c
onsider your unique needs. What can you not live without on a daily basis?
Think about any medical equipment, medications, and special food supplies that you will need.
Slide5Shelter In PlaceSheltering at home could be dangerous if you use any medical equipment that requires a power source. If this is the case, please consider evacuating.Consider buying a generator, but remember to use safely! Many people get hurt using generators incorrectly each year.
Make sure you have a disaster supply kit ready.
Notify your power company that power is a medical necessity and they will do their best to restore your power as soon as possible
Pre-register with your local emergency management office. Info can be found at
www.floridadisaster.org/counties
Slide6Evacuate out of the path of the stormEvacuate out of the path of the storm- this can be the safest option but can take a lot of pre-planning.
Plan ahead- make a list of friends or family you might be able to stay with.
Check hotel availability in areas outside the path of the storm.
Always take your disaster supply kit with you.
Consider transportation options- will you be able to transport yourself?Consider taking additional gas as it may be in short supply during evacuations.
Slide7Evacuate to a ShelterEvacuate to a local shelter or a special needs shelter. If you have any special medical needs, you will be required to go to a special needs shelter.
Pre-register for special needs shelters
at
www.floridadisaster.org/disability/specialneeds
Remember that electricity and assistance may be somewhat limited, even at a special needs shelter. Bring back up batteries for any medical equipment if you have them.
Bring a caregiver with you as staff at the shelter may not always be available to help.
Bring your disaster supply kit with you.
Slide8Evacuate to a ShelterBe aware that you may not be able to shower or bathe at a shelter. Plan accordingly. Personal care wipes can be helpful.
Hospital beds may not be available at the shelter. If you have a power wheelchair and can sleep in it, bring it with you.
Bring any food or tube feeding supplies with you. Access to food is limited and the food is the same for everyone so there is no special food available.
Slide9Evacuate to a Skilled Nursing FacilityIf you need more care than a special needs shelter can provide, you may go to a skilled nursing facility.You will have to pay out of pocket for the length of your stay.You will have to make arrangements ahead of time which includes getting paperwork completed by your primary care physician.Keep in mind that if you go to the emergency room before storm, you will have to meet medical criteria for a hospital stay so you may not be admitted.
9
Slide10TransportationTransportation resources are limited so plan your transportation ahead of time.
Transportation varies by county so contact your county to determine options. Info can be found at www.floridadisaster.org/counties
Transportation typically can be provided to shelters but not outside of the county.
At the time of the emergency, you can call the State Assistance Information Line at
800-342-3557.
Slide11Essentials in a Disaster Supply KitA 3 to 5 day supply of food for each personFirst Aid Kit
Sleeping bags, Pillows, BlanketsToiletries including toothbrush, toothpaste, shampoo, soap, personal care wipes
Flashlights, Radios, Batteries, Fire Extinguisher
Medications, Medical supplies
Special medical equipment such as Trilogy machines, Power Wheelchairs, Hoyer Lifts, including backup batteries*
Please visit
www.ready.gov
for a more detailed description of a Disaster Supply Kit
Slide12Helpful Websiteswww.redcross.org
www.floridadisaster.org
www.elderaffairs.state.fl.us
www.ready.gov
Slide13Managing Before, During, & After the Storm
Hurricane Preparedness
June 11, 2018
Presented by: Angelica
Gicalone OTR/LMayo Clinic Florida
Slide14Write a Family Emergency PlanMake copies of your Family Emergency Communication Plan for each member of the household. Post a copy in a central place at home. Enter household and emergency contact information into all household members’ mobile phones or devices.
14
Slide15Power OutageIn a technologically dependent society nothing can make an extended power outage easy. However a little bit of planning can go a long way
Here are a few tips to assist you in preparing for a power outage during a hurricane season.
Slide16Communications- PhoneRemember texts are best !!Short messages like “I’m OK. At library” are good.Conserve your mobile phone battery by reducing the brightness of your screen, watching videos and playing video games to help reduce network congestion.
16
Slide17Store at least one emergency contact under the name “In Case of Emergency” or “ICE” for all mobile phones and devices. This will be helpful as someone may need to identify your emergency contact promptly.
17
Slide18Create a group list on all mobile phones and devices of the people you would need to communicate with if there was an emergency or disaster. Make sure all household members and your out-of-town contact know how to text if they have a mobile phone or device, or know alternative ways to communicate if they are unable to text.
18
Slide19Radios Communication with external sources like regular internet or TV can be interrupted. The availability of a Hand crank radio can make a differenceThe tried and true radio waves can be a valuable way to keep up with local weather and other news in the event of an outage.
19
Slide20Here are some examples of hand crank radios: the Grundig FR200 advertises access to AM, FM and two shortwave channels, a design makers say makes it weatherproof, and an LED emergency light. G-touker Emergency Handle Crank Dynamo Flashlight Weather Radio Portable AM/FM with USB chrage for smart phone
When choosing a radio look at the features for accessibility according to your condition.Examples of hand crank radios
20
Slide21When it comes to communication, batteries are key:Here are a few tips:Recharge all your available batteries in advance.Make sure you have 1or more back up chargers.
Juice Packs can be purchased for under $100, with multiple options around $50. An example is: Mophie, makes them
for Apple and Android devices
) and many of the chargers double as protective cases for your smartphone or tablet.
Solar charges can be an alternative. However you must have a dry spot or a break from the rain. chargers that use solar power
21
Slide22Light sourceFlashlights are a must but choosing the right ones can make a differenceHere are some tips when it comes to flashlights:Having a flashlight that plugs into an outlet can be very helpful,
You know exactly where they are. Here are some examples that you can find online:
battery
powered lights
. When the power goes out, they automatically come on, saving you those moments of fumbling.There are more sophisticated light sources like the the Striker Magnetic LED Light, which is hands a free about the size of a golf ball and designed to stick to surfaces
.
22
Slide23Power inverterThey can be very helpful to power laptops or computers during an outage, this may be the way to go.The inverter can be used to convert DC power from your car battery into AC juice that can be used for things usually plugged in to a wall outlet.Specialized battery stores can be helpful, ask
an employee how much of a charge you need for what you want to do.
23
Slide24Tips about Equipment and MobilityPlan how to evacuate with assistive devices or how to replace equipment if it gets lost or destroyed. Keep records in a secured place of the model of your Power Wheelchair and other large items, and who provided it such as Medicaid, Medicare or private insurance.
24
Slide25If you are using a power wheelchair, have a lightweight manual chair available as a backup. Make sure your caregiver is familiar with the operation of your Power W/C.Know the size and weight of your wheelchair and if it is collapsible for transportation.If
you use a seat cushion to protect your skin remember to take your cushion with you.
25
Slide26ClothingComfortable clothing Easy access or adaptive clothing may be helpful, like:Snap back sweatersSide Zip pantsOpen back lounge sets
Cut away dress or pants, leaves back open with easier access for hygiene
26
Slide27Other things to think about, that may be helpful…Dry shampooMoist towelettes, flushable wipes or portable bidetsHaving a Whistle to signal for helpDust mask to help filter contaminated air
Garbage bags and plastic ties for personal sanitationManual
can opener for food
27
Slide28Don’t Get Stuck Out of Breath!Hurricane Preparedness
June 11, 2018Presented by: Michael Reeser, RRT
Millennium Respiratory
Slide29HURRICANE PREPAREDNESSWatch the news or weather channel during hurricane season.
Shelter/Evacuate/Stay Home?
Make a
Plan
and stick to your Plan.
Last minute changes can get you stuck in the middle!
Slide30Complacency can leave you our of breath! Heat and Humidity cause increased risk to breathing. Hurricanes = 100% Humidity!
Heat and dehydration can cause thickened mucus, airway plugging and increased breathing difficulty. Stay cool & hydrated.
Complacent:
KNOW YOUR TOLERANCE!
Slide31Medical Shelter or Evacuate:The risk of staying at home is too high, unless you have a whole-home generator, do not risk it!
Shelter: Ask your provider for shelter paperwork today! Every county has its own application. If you are not assigned to a shelter, you can not get in.
Allows you to have power to run your equipment
Less humidity and risk to breathing
Evacuating
? Have a plan – know where you are going!
Leave early to avoid getting stuck in traffic or unable to find gas
Know your route and make hotel reservations early
Slide32Medical To-Go Bag:Non-Invasive: Medications
Medication/Therapy ListSpare Ventilator & Cough Assist Tubing & Masks
Ambu
Bag with mouth piece or mask
Hand SanitizerInvasive: (add to above)
Spare Trach Tube and Syringe
Spare Trach Supplies (Inner Cannulas, 4x4’s, Trach Ties, Cleaning Kits, gloves)
Suction Catheters & Saline
Scissors
Don’t forget your equipment
power
cords
!
Contact Millennium Respiratory or your current equipment provider early! Remember the hurricane affects them too and it could be days before someone can get you supplies!
Slide33HOW LONG DO I HAVE? Equipment Battery LifeTrilogy Vent: 2.5 hours Internal; 2.5 hours Detachable
Astral Vent: 8
hours Internal
12 Volt Back-Up Battery: 8 hours
Cough Assist: Can use a 3 hour Trilogy Detachable BatteryConcentrator: No Battery. Know your usage and have enough back up tanks to lastSuction Machine: 1 hour Battery for intermittent use
Nebulizer: No Battery. Can use an oxygen tank
Slide34Communication Essentials Hurricane Preparedness
June 11, 2018Presented by: Wendy Olsen, MS CCC-SLP
The ALS Association Florida Chapter
Slide35AAC: What is it?Augmentative and Alternative Communication
Speech Generating Devices
Typically have a large battery capacity
Depending on the brand, it may hold a charge for up to 48 hours
A
lways make sure you take good care of your device and follow the user’s manual for maintenance guidelines
* Please see handout for additional information
Slide36AAC: What is it?Text to Speech Applications Can be used on any smart device (iPad, Android, etc.)
36
Slide37TechnologyTechnology is great! Until it doesn’t work…
37
Slide38What are solutions when the power goes out?Portable Power Box Emergency Home Use
38
Slide39What are solutions when the power goes out?Portable Chargers39
Slide40What are solutions when the power goes out?Rapid Access BoardsGreat in any situation when electricity is an issueUse scanning method
40
Slide41What are solutions when the power goes out?Semantic Boards/Flip BooksGreat in any situation when electricity is an issueUse scanning method
41
Slide42Useful LinksLetter Cuing http://www.childrenshospital.org/centers-and-services/programs/a-_-e/als-augmentative-communication-program/protocol-of-assessment-considerations/letter-and-topic-cueing
Assisted Partner Scanning Videos
http
://www.childrenshospital.org/centers-and-services/programs/a-_-
e/als-augmentative-communication-program/protocol-of-assessment-considerations/quick-access-and-low-tech-tools/partner-assisted-spellingCommunication Flip Bookhttp
://www.childrenshospital.org/centers-and-services/programs/a-_-
e/als-augmentative-communication-program/protocol-of-assessment-considerations/quick-access-and-low-tech-tools/patient-customized-communication-tabbed-flipbook
These resources are free and available due to
the generosity of
Boston Children’s Hospital
42
Slide43Don’t Forget About Food!Hurricane Preparedness
June 11, 2018Presented by: Jeanne Struve, Registered Dietitian/Nutritionist
Lee Health
Slide44Plan and PrepareThink about your nutrition just as you would your medications.
Don’t assume you will be able to find what you need even if you decide to evacuate.
If you need electricity to puree foods or for a tube feeding pump – let the power company know now.
Write out a copy of your diet modifications or tube feeding schedule – laminate it – and keep it with you at all times.
Slide45Modified Diet:Thickener – Be sure to have a 2 week supply on hand.
Remember to stay well hydrated. If you use pre-thickened liquids – have at least a 7 day supply.
Supplements are only considered nectar thick if cold.
Do not add ice to chill thickened liquids.
Slide46Modified Diet:Puree diet – consider keeping jars of baby food on hand.
If you use a blender to puree foods, consider purchasing a cheap model to take with you to a shelter or if you evacuate.
Slide47Tube FeedingAlways have a 2 week supply of formula and other tube feeding supplies on hand.
If you use a pump talk to your supply company now and obtain gravity bags.
Formula is safe to 95 degrees but it is best to keep it at a temperature that you are comfortable at.
Don’t forget the water! Again, a 2 week supply for flushing and fluid needs.
Slide48Tube Feeding and EvacuationIf your plan is to evacuate, contact your supply company to see if they can ship formula and supplies to your destination.
Take at least 2-3 days extra with you in case there is a delay in receiving the supplies.
Slide49Thank you and stay well nourished!
Slide50Hurricane Preparedness Resources50
Slide5151
Slide52QuestionsPatti Stanco813-637-9000 ext. 110pstanco@alsafl.org
52