Ellie Robinson Lead Cancer Nurse Alison Hall Cancer Information Specialist Nottingham University Hospitals NHS Trust Starting point We would like the opportunity to see a choice of wigs before starting ID: 1009125
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1. Building a robust hair loss service for cancer patients Ellie Robinson - Lead Cancer Nurse Alison Hall – Cancer Information SpecialistNottingham University Hospitals NHS Trust
2. Starting point“We would like the opportunity to see a choice of wigs before starting treatment, so that we would have time to come to terms with hair loss and choose how we want to present ourselves in times of need”Patient Story presented at Trust Board to describe the lack of variety or choice of hair loss products for Black and Minority Ethnic Groups
3. Scoping Patient information deficitLack of internal training for clinical teamsLack of patient satisfaction surveyProcess not reviewed since 2013 No audit of external service providersNo review of providers – 3 providers used consistently Lack of support from procurement – low value productsNo regulation of NUH vouchers for wigs
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5. Developing the teamLead Cancer NurseMacmillan Cancer Information SpecialistLived experience memberNUH Patient Experience LeadNUH Equality and Diversity LeadClinical Nurse Specialist’sOncology and Haematology MatronsChemotherapy NursesBAME Network Team MembersCancer Centre Administrator
6. NHS Sustainability Tool
7. How was NHS Sustainability Tool useful? Identification of strengths and limitationsChannelled a focus on staff, processes and organisationHigh scores:Clinical leadershipBehavioursCredibility of evidence Monitoring of progressLower scores:BenefitsInfrastructureSenior Leadership engagementInvolvement and trainingAdaptability
8. What did we do?Engaged Senior LeadersBuilt relationships with local hair loss product providers Created a definitive pathway for voucher reimbursementProduced a patient information bookletProduced a voucher to redeem against the cost of hair loss productsProduced a Hair Loss Products Supplier FactsheetImplemented a Patient Hair Loss Service Questionnaire Trained clinical teamsCreated a robust process with infrastructure to support the design
9. Hair Loss Pathway Patient has full or partial hair loss or hair thinningHealthcare Professional provides: ‘Hair loss information for patients’ bookletVoucher to redeem against the cost of hair loss productsHair Loss Products Supplier FactsheetPatient Hair Loss Services Questionnaire – either paper copy or Flyer with details to complete electronically Clinical expertise and support individual to patientPatient contacts hair loss products supplier of their choosing from the Supplier factsheet, chooses their product (wig, hat, scarf) and redeems the voucher against this cost. Patient completes NUH Hair Loss Service questionnaire for cancer patients.
10. ImpactEquitable service – fit for purpose and fit for allImproved patient experienceImproved working relationship with external organisations Improved confidence in clinical teams to deliver the pathwayImproved engagement from Senior Leaders
11. Next StepsAdapt process beyond cancer to other clinical areas Roll out to external providers regionallyEmbed Hair Loss Pathway training as mandatory for all Oncology and Haematology Nurses, Chemotherapy and Radiotherapy staff.Provision of onsite hair loss clinics
12. Thank you