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Nutrition and Cystic Fibrosis Nutrition and Cystic Fibrosis

Nutrition and Cystic Fibrosis - PowerPoint Presentation

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Nutrition and Cystic Fibrosis - PPT Presentation

Module 4 Patientcentered Behavior Interventions Learning Objectives Describe effective strategies for facilitating behavior change in patients Discuss the impact of parentalcaretaker life course on disease management and overall health of the pediatric CF patient ID: 591513

child behavior nutrition food behavior child food nutrition foods caregivers parents change strategies goals table care specific meal adherence promote vitamin patient

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Slide1

Nutrition and Cystic Fibrosis

Module 4:

Patient-centered

Behavior

InterventionsSlide2

Learning Objectives

Describe effective strategies for facilitating behavior change in patients.

Discuss the impact of parental/care-taker life course on disease management and overall health of the pediatric CF patient.

Describe appropriate culturally competent approaches to patient care.Slide3

Importance of Adherence to Nutrition Recommendations

Strong link between weight-for-length/BMI and lung function

Early intervention likely to provide best long-term outcomes for growth and survival

Historically among CF pediatric population non-adherence to nutrition recommendations is high

Dietary adherence closely related to

Child mealtime behaviorParent-child mealtime interactionsKnowledge level of nutrition and CF

www.cff.orgSlide4

Strategies to Promote Behavior Change

Differential attention – parents/caregivers praise appropriate behavior, ignore inappropriate behavior

Child Behavior

Typical Parent Response

Behavioral

Change

Taking

bites

Not Noticing

Compliment

child on eatingExcess talkingInstructing child to eatFeeding childIgnore child until they take a bite, then answer questions or engage in conversationComplaints such as not liking food or negotiatingCoaxing, promptingMaking meal itemsIgnore complaints and compliment child for eating foodsLeaving the tableCoax or instruct child to returnSet rules about staying at the table during mealsGuide back to table with little discussionComplaints of being fullCoaxing, promoting, feedingNegotiate amount of food child will eatSet appropriate food intake expectations and meal length, and set rewards

Adapted from

Borowitz

et al.

Using

Nutrition to Stay Healthy with

CF

presentation

. Slide5

Strategies to Promote Behavior Change

Contingency management

– parents/caregivers establishing expectations along with positive and negative consequences

Rewards – provide immediately after positive behavior

Withhold reward for negative behaviorContracting – Written agreement between parents/caregivers and child outlining goals and consequencesSMART goals – provide more accountability and measurabilitySpecific

MeasurableAttainableRealisticTimelySlide6

Getting to the Goal

Anticipated Results

Broad Goals

Specific Goals

Weight gain

kcal and fat intake

Add 1

Tbs

of butter to your oatmeal every morning

Decreased malabsorption

Take enzymes as prescribed

Take enzymes before each meal or snack on 5 out of 7 days

Improve vitamin D status

Take vitamin D supplement as prescribed

Take vitamin D supplement each morning before your bowl of oatmealSlide7

Goal Setting Practice

Rewrite the following goals to be more

specific:

Remember to take your acid pill

Increase your

activity over the next monthGain 2 pounds by the next clinic visitSlide8

Strategies to Promote Behavior Change

See text Table 17.2 Behavioral strategies and application in CF nutrition.

Consider…

Culture aspects of nutrition education and counseling

Life course of both child and

parents/caregiversIt can be difficult and may take a significant amount of time for parents/caregivers to reverse problem behaviorsParents/caregivers may need support themselves to help facilitate behavior change

RDN provides education and assistance to parents/caregivers and child with these behavior change strategiesMay need referral to feeding programWork with other professionals on health care team, especially social workerCheck in at each clinic visit and reinforce conceptsSlide9

Considerations When W

orking

with

P

atients

and Families

Aspects of food behavior and food environmentWhat the RDN needs to know

Example

Availability

What types of food are available

both in the environment and economically?Note foods available from local food sources and their relative priceAcceptabilityWhat items are accepted as food and under what conditions?Differentiate those foods preferred from those available but not preferredSelectionWhich foods are most commonly chosen for consumption, and who makes the food selection decisions?Differentiate those foods chosen consistently that make up a substantial part of overall intakeProcurementHow and where are foods obtained by household?Note foods obtained from grocery stores, home gardens, vending machines, restaurants, etc.PreparationHow is food prepared before eating?Cooking and preparation methods for major foods consumed.

Adapted from Table, Terry RD.Slide10

References

Nutrition in Cystic Fibrosis

, Yen and

Radmer Leonard – Chapter 17

Cystic

Fibrosis Foundation – www.cff.org Borowitz et al.

- Using Nutrition to Stay Healthy with CF presentationTerry RD. Needed: A new appreciation of culture and food behavior. J Am Diet Assoc. 1994;94(5):501-503.