Listening to Our Elders: Telling a Story through Your Data - PowerPoint Presentation

Listening to Our Elders: Telling a Story through Your Data Collette Adamsen, MPATurtle Mountain Chippewa&Cole Ward, MASisseton Wahpeton OyateNational Resource Center on Native American Aging (UND)Funded by Administration for Community LivingGrant Number 90OI003/02

2 National Resource Center on Native American Aging The NRCNAA is one of three centers that are funded through the Administration Community Living (ACL/AOA). The other two centers are: The National Resource Center for American Indian, Alaska Native and Native Hawaiian Elders (Alaska) National Resource Center for Native Hawaiian Elders (Hawaii) NRCNAA established in 1994, at the Center for Rural Health, University of North Dakota School of Medicine and Health Sciences

Tribal Participatory ModelFisher & Ball (2003)Tribal Participatory Mechanisms that Empower Tribal OversightTribal ResolutionTribal Data Ownership Tribal Capacity BuildingTrained staff or volunteer from tribeCulturally-Fit Method and AssessmentWesternized research methods, culturally customizingApplicable, Interpretable, and Usable ResultsData to tell the story of our Native elders’ needs

How we listen: “Identifying Our Needs: A Survey of Elders ”Assesses Elders’ health and social needsRun in three year cycles and currently in cycle VIITribal Elders have the opportunity to share (and document) their health and social needs stories

The StorytellersNative American elders residing primarily on reservations, Alaskan villages and Hawaiian homesteads.Individuals age 55 and over living on or around Indian areas. Age 55 is considered comparable to 65 and over in the general population

Listening to our EldersA story of “what we have and what is needed” (local needs and resources are defined). A collaborative response by which the nature and extent of needs can be both assessed and documented.A capacity-building platform for planning that is based on the statistical results from your own communityListening to the Elders’ unique stories about themselves and their communities through survey

Listening to our Elders (Continued)The primary method of data collection is the survey instrument (administered face-to-face with the elders).A standardized assessment instrumentSurveys provided to the tribes by NRCNAA at no cost.Surveys processed (optical scanner) by NRCNAA at no cost.For more information on the survey please go to https://www.nrcnaa.org/needs-assessment/materials

8 NRCNAA 2017 Identifying Our Needs Survey Research Process Survey instruments – a standardized tool Assistance with sampling Training on data collection Technical support Data entry Data analysis Statistical profiles of your elders Comparisons with national norms

Sample Needs Assessment Survey

Survey Needs DataGeneral health status of eldersIndicators of chronic health Indicators of visual, hearing, and dental Tobacco and alcohol use patternsDiet, nutrition, and exerciseSocial support patterns, housing and workHealth care accessUnmet needsUse and acceptance of services

Now Use/Would Use Survey Question Sample

Cycle VI Tribal Aggregate Unmet Needs

Unmet NeedsNow UseCongregate Meals 17.2% Home Deliv. Meals 15.1%Senior Center Prog. 14.9%Transportation 9.6%Caregiver Prog. 5.6%Info. and Ref. Asst. 5.2%Home Health Ser. 4.4%Would UseHome Rep./Mod. 38.4%Home Deliv. Meals 34.5%Transportation 32.2%Home Health Serv. 31.1%Financial Asst. 29.4%Caregiver Prog. 28.8%Emerg. Resp. Sys. 27.4%

NRCNAA Data Use TemplateFive most common chronic diseases for Our Tribe (persons 55 and over) The top chronic diseases found among our elders were diabetes, high blood pressure, cataracts, arthritis, and depression. Each of these lead to limitations on peoples’ ability to take care of themselves. Nutritional care is particularly important for high blood pressure, diabetes, and cataracts.

Trending Data for Activities of Daily Living for Native Elders

Trending Data for Instrumental Activities of Daily Living for Native Elders

Alzheimer, Dementia, and Disability for Native Elders Cycle VI

Nutritional Health Data among Native Elders Cycle VI

Data telling a StoryQuantitative DataUnmet needs can lead to health and social disparitiesChronic conditions can become higherIndependent living can be affected Leading to difficulties performing ADLs and IADLs and/or disabilitiesNutritional health is important to reducing the risks

Regional and National Data Use The applications for data at these levels are numerous and focus on: Training for increasing skills for Native elder service providers Advocating for resources at the state, regional, and national level

Regional and National Data Use Developing policy for informing national Native elder organizations Filling the research gap for Native elder related publication Training Native researchers in the aging field

Community Level Capacity BuildingRenewal of Title VI Native Elder Nutrition and Caregiving Grants Strengthening of grant proposalsDocumentation of health disparitiesDocumentation of need for health promotion, home and community based services, and assisted livingThe Data tells the Story of the Native Elders in Tribal Communities

Past Stories (cycles I-VI)

The Needs Assessment TeamPaula Morin-Carter, PhD., NCRNAA DirectorCollette Adamsen, M.P.A, Project Coordinator Cole Ward, M.S., Research SpecialistCody Ward-Student Research Assistant

Contact InformationFor more information contact: National Resource Center onNative American AgingCenter for Rural HealthSchool of Medicine and Health SciencesGrand Forks, ND 58202-9037Tel: 800-896-7628Fax: (701) 777-6779http://www.nrcnaa.org