PPT-Cystic Fibrosis Patient and Family Advisory Council

Improving the Adult Care Experience at Stanford Angel MamminoHaynes Secretary CF PFAC March 12 2016 Mission Statement The Stanford Adult CF Advisory Council ACFAC provides feedback to and partners with members of the healthcare team to improve the patient and family experiences and care at Stanford University Hospital The Advisory Council is committed to the betterment and excellence of the entire Cystic Fibrosis Center at Stanford including pediatric transitional and adult care at Lucile Packard Childrens and Stanford University Hospitals. Vaughan Somerville. Who am I. Heel Prick. Sweat Test. Heel Prick. Diagnosis. Effects 1 in 2500 people. ~ 450 people in NZ. Average life expectancy 37-40. 97% of males are in fertile. What is Cystic Fibrosis (CF). Sofhia. . Ytuarte. University of Arizona Pediatric Pulmonary Center. Nursing Trainee. June, 2015. About the Project. Request . from a parent to provide education during the spirit . week. CF Education given at . Module 1: Cystic Fibrosis Overview. Learning Objectives. Describe the pathophysiology of cystic fibrosis, and specifically how the disease process alters nutrient digestion, absorption, and metabolism.. This program will include a discussion of investigational agents not approved by the FDA for use in the US, and data that were presented in abstract form. These data should be considered preliminary until published in a peer-reviewed journal.. B. oyle. Other names for cystic fibrosis are CF, Pancreas fibrocystic disease, and Pancreatic cystic fibrosis. The name was chosen because.  . cystic . means biliary . area . and fibrosis refers to the scarring of the tissue. So Cystic Fibrosis means tissue scarring of the biliary . Module 2: . Nutrition Assessment and Intervention in Pediatric CF . Learning Objectives. Determine appropriate energy, macronutrient, and micronutrient needs for pediatric patients with cystic fibrosis.. Module 1: Cystic Fibrosis Overview. Learning Objectives. Describe the pathophysiology of cystic fibrosis, and specifically how the disease process alters nutrient digestion, absorption, and metabolism.. . Single gene . Mendelian. disorder. Gene codes for the Cystic Fibrosis . Transmembrane. Conductance Regulator protein (CFTR). Daniel R. . Taub. and Joshua Page. Cystic Fibrosis: Exploration of evolutionary explanations for the high frequency of a common genetic disorder.. by. Kathleen A. Nolan and Allen J. . Burdowski. . Biology . and Health Sciences. St. Francis College, Brooklyn, NY. NATIONAL CENTER FOR CASE STUDY TEACHING IN SCIENCE. Students, before coming to class you should have:. Patient and family perspectives can help achieve higher quality care in your practice .  . . Patient & Family Advisory Council (PFAC) . is . an approach to the planning, delivery, and . evaluation of . dion. By: Alex-. A. nn and . Noémy. Personal. information. She’s. . forty. - . eight. ( 48 ) . years. . old. .. S. he. . was. . born. in March. . the . thirty. ( 30 ), . nineteen. . sixty. Annual Data Report 2017. Full report can be found at . cysticfibrosis.org.uk/. registryreports. 1.1 Summary of the UK Cystic Fibrosis Registry . UK Cystic Fibrosis Registry Annual Data Report 2017. 1.2 Age distribution by gender . Modular, biophysically-inspired models can help elucidate Cystic Fibrosis (CF) airway pathophysiology across multiple scales and provide a bridge from the benchtop to the clinic. What is new inside? . Dr. JP Jarczyk, MD. February 11, 2023. Disclosures. I have no conflicts of interest to disclose. Objectives. Understand basic genetics of CF. Understand basic pathophysiology of CF. Understand treatments for pediatric patients with CF.