KidsDeserveStGeorges Toolkit to support keeping childrens cancer services at St Georges KidsDeserveStGeorges The paediatric cancer principal treatment centre (PTC) for the South Thames region is currently based at St Georges and the
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Presentation Transcript
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#KidsDeserveStGeorges Toolkit to support keeping children’s cancer services at St George’s<br>
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#KidsDeserveStGeorges The paediatric cancer principal treatment centre (PTC) for the South Thames region is currently based at St George’s and the Royal Marsden.
The majority of outpatient appointments, diagnostics and chemotherapy are delivered at the Marsden. The majority of the surgery, expertise from regional children’s specialists and all of the intensive care for the very sickest children is delivered at St George’s.
NHS England is reviewing options for the future of the PTC, which will in future be located either entirely at St George’s, or moved to the Evelina.
We believe that keeping the services at St George’s is the best result for children and their families.
NHSE launched a 12-week public consultation on Tuesday 26 September and will review feedback before making a decision into the future location of services. Background<br>
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#KidsDeserveStGeorges Only St George’s has 25 years' experience of delivering specialist cancer care for children
St George's and Royal Marsden staff have worked together this entire time and know what is best
Closing the regional children’s cancer service – which is rated outstanding – and giving it to another hospital will have a knock-on effect on patient care elsewhere in children's services too
St George’s is ready to build a new children’s hospital in the timescales and budget required
St George's has the best value bid and its new children’s hospital will offer dedicated parking and accommodation facilities that minimises travel challenges in central London - which we know matters
Families want their kids to continue their cancer care at St George’s – not just because of the outstanding care, but because of the location – removing the stress of central London travel and parking
Fantastic medical facilities and innovative care – including St George's offering ground-breaking new immunotherapy cancer treatment that modifies a patient’s own cells to help fight cancer – creates trust
St George’s research centre has been collaborating with the Institute of Cancer Research and the Royal Marsden for many years in children’s cancer studies, as well as other children’s health studies. Why #KidsDeserveStGeorges<br>
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#KidsDeserveStGeorges Key facts and figures 130,000 children’s appointments last year 25+ years’ experience caring for children with cancer Children’s services are rated Outstanding by the CQC One of the largest children’s surgery services in the UK Treated more than 170 children for cancer last year A strong national and international reputation for children’s research<br>
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#KidsDeserveStGeorges Our vision for the future<br>
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#KidsDeserveStGeorges What St George’s staff are saying “Children’s cancer services have been embedded at St George’s Hospital for the past 25 years. During this time the expertise to support these children has developed alongside the developments in cancer care. All of the specialist services at St George’s are integrally involved and have developed pathways of care.
Relocating children’s cancer services would mean all this expertise and collaboration would need to be rebuilt and reinvented. This would have an immediate impact on children with cancer undergoing treatment. It would also adversely impact the stability and provision of specialist services (PICU, surgery, respiratory etc) for all other, non-cancer children under the care and support at St George’s from south west London, Surrey and further afield.
The functional relationships between clinicians at St George’s and the Royal Marsden have developed over decades. It is inconceivable that relocating the cancer service can provide similar working expertise, trust and relationships in a short period of time.” Dr Richard Chavasse Consultant Respiratory Paediatrician at St George’s, South Thames Paediatric Network Lead for Long Term Ventilation, South West London ICB Children and Young Persons Lead and WellChild Doctor of the Year 2023 (pictured with Prince Harry, Duke of Sussex).<br>
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#KidsDeserveStGeorges What patient families are saying Emma van Klaveren Finlay said daughter Floriana received “fantastic” care at St George’s and the Royal Marsden and is now in remission.
Emma says Floriana needed to attend St George’s at least weekly during her care, and travelling to central London would have increased their already high levels of stress.
“Caring for someone with cancer is a 24/7 job and the slightest thing means you have to leg it to the hospital – a raised temperature could mean sepsis.
“You can’t easily drive to central London and you can’t take an immuno-compromised child on the tube, so it would have really added to the stress and expense. I will be completely devastated if this change goes ahead.” Emma van Klaveren Finlay and Floriana with dad James and sister Ishbel<br>
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#KidsDeserveStGeorges What else do we know? Nine in 10 young cancer patients and their families (93%) used a car to make all or at least part of their journeys to and from hospitals and treatment centres, calling it the “only viable way” to make the required journeys. Research undertaken by Young Lives vs Cancer www.younglivesvscancer.org.uk/wp-content/uploads/2023/06/Running-on-Empty-Report.pdf Parents of children with cancer are unequivocal:
They don’t and won’t use public transport with
a poorly, vulnerable child.
That’s why St George’s has built this into plans for the brand-new Children’s Centre with the availability to drive up to the front door and park in dedicated car parking spaces, therefore eliminating the risk of infection to vulnerable kids from public transport. It will boast family accommodation too. St George’s<br>
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#KidsDeserveStGeorges Respond to the consultation and give your views
Let your personal contacts know the consultation is open and encourage them to respond favourably
Be an ambassador for St George’s, raising awareness of the key messages with your contacts and personal networks to encourage others to complete the consultation
Share key messages, films, graphics and website link – along with your thoughts – on social media using #KidsDeserveStGeorges and tagging us @StGeorgesTrust on Twitter, Instagram, Facebook and LinkedIn
Share and comment on St George’s #KidsDeserveStGeorges social media posts
Write to your local MPs and the Health Secretary, Steve Barclay – and encourage others to do the same – to say why children’s cancer care should remain at St George’s
Put up the poster and hand out factsheets across your personal networks
Feedback on any conversations you’re having and if you’ve completed the consultation. How you can get involved<br>
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#KidsDeserveStGeorges Website hub containing all information
Intranet hub with information for staff
Printed factsheet
Printed poster
Digital assets for social media
Short film
Fly-through of our future vision
Letter templates for MPs etc – via Wandsworth Council's campaign
Printed consultation cards (coming)
Brochure (coming) Campaign materials Please use these assets to help spread the word that #KidsDeserveStGeorges<br>
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#KidsDeserveStGeorges Our children’s cancer services<br>
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#KidsDeserveStGeorges We need your support We’re calling on you to support St George’s vision to keep children’s cancer services, where they have been located for more than 25 years.
Scan the QR code to take you to the St George’s website hub with more information.
Alternatively, if you have any questions about the consultation, why #KidsDeserveStGeorges or if you would like hard copies of any of the printed materials, please email:
communications@stgeorges.nhs.uk<br>
