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956515 CHSVHnp 69 ANNEX DGD2C EN value when it comes to eg widespread diseases as cardiovascular disease cancer depression etc On the basis of registries research results can beenhanced as. Since then the registries have provided information on incidence and patterns of cancer that in terms of quality and validity meet international standards In India the cancer registry perhaps is the only programme for reliable incidence and mortalit Cancer Data Saves Lives. The Vital Role of Cancer Registrars . in the Fight against Cancer. 18 Million. . 1.5 million. . 67%. Cancer Registries. Statistics. Treatment strategies. Public health initiatives. The case of biomedical sciences. Juliana E. . Raffaghelli. Sara Valla. . Stefania . Cucchiara. Alessandra Giglio. Donatella Persico. . Institute. for Educational Technologies. National . Research. Hugh Look. For senior management. Research expertise information. We are only talking about an individual's professional information: we are assuming that personal information is not included in profiles.. 9565/15 CHS/VH/np 69 ANNEX DGD2C EN value when it comes to e.g. widespread diseases as cardiovascular disease, cancer, depression etc. On the basis of registries, research results can beenhanced, as Late 1990’s Kevin Peterson wanted to improve DM care in PCP offices. Did literature search on modalities that would be effective. He found nine that were put into the acronym TRANSLATE. Did successful randomized control trial in over 8,000 diabetic patients. Guus Bronkhorst. The Netherlands. Topics. Once. . only. in the Netherlands. System of base . registries. – . law. . and. system. Standard business . reporting. – . framework. pp. Once. . only. Go . Yoshizawa. (Osaka University). Background. Patient registry for rare diseases become gradually popular to collect more information for medical research. As the registration process is mostly on a paper basis, an online-based registration system can be more effective and efficient. BSCOS Annual Meeting . Liverpool 2015. David Rowland. Good Medical Practice (2013). “You must take steps to monitor and improve the quality of your work.”. “You must take part in systems of quality assurance and quality improvement to promote patient safety.”. Dr. . Priya. . Rai. Deputy Librarian. National Law University Delhi. Priyanlud@gmail.com. Caliber2013-Library Vision 2020 Moving Towards the Future . Information Seeking Behavior: Reviews. Jim Griffin. griffin@onehouse.com. Vienna June 2013. S. pirit of discussion. Lincoln: If two people think the same about this, we don’t need one of you.. Dialogue: Not rules, absolutes or definitive findings.. Madrid. Maarten Landuyt & Johan Van . Bussel. Standardisation. of & data reuse for Belgian health registries. Sponsored by. Unknown effectiveness (50%). Likely to be ineffective or harmful (3%). Risk factors. Incidence. Survival. Mortality. Population Surveys. PBCRs. PBCRs. Vital statistics. By Cancer Type. By stage. Attributable Risk. Prevalence. DALYs. Associated Economic Costs. Cancer Control Measures. How are cancer statistics kept up to date?. Cancer Reporting. Example: . Dx. stage . II colon . cancer - . 2007 . Cancer has . metastasized to the . liver – 2009. H. ow . does the hospital and clinician .