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Model Disability Survey - PPT Presentation

and World Health Surveys Alarcos Cieza Disability and Rehabilitation World Health Organization Disabling barriers Break to include Model Disability Survey MDS Chilean law requires the state to carry out a disability survey every 10 years ID: 297100

disability health mds difficulties health disability difficulties mds capacity 2004 section factors amp pwd 2015 sage world survey economic

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Slide1

Model Disability Survey and World Health Surveys

Alarcos CiezaDisability and RehabilitationWorld Health OrganizationSlide2

Disabling barriers – Break to include

Model Disability Survey (MDS)Slide3

Chilean law requires the state to carry out a disability survey every 10 years3Slide4

Civil society dialogs4Slide5

Topics addressed in the civil society dialogs5Slide6

6Comparison

ENDISC I MDS X√√√X

X

X

X

Public buildings

Private buildings

Information

Places of recreation

UrbanisationSlide7

70% was covered by the MDS!!7Slide8

8

20042015Slide9

Article Number

CRPD Article NameMDSAnnex 1  

5

Equality and Non-discrimination

6

Women and disabilities

7

Children with disabilities

8

Awareness-raising

9

Accessibility

10

Right to life

 

11

Situations of risk and humanitarian emergencies

 

12

Equal recognition before the law

13

Access to justice

 

14

Liberty and security of the person

15

Freedom from torture or cruel, inhuman or degrading treatment or punishment

 

16

Freedom from exploitation, violence and abuse

 

17

Protecting the integrity of the person

18

Liberty of movement and nationality

19

Living independently and being included in the community

20

Personal mobility

21

Freedom of expression and opinion, and access to information

22

Respect for privacy

 

23

Respect for home and the family

24

Education

25

Health

26

Habilitation and rehabilitation

✔Slide10

Target

    IndicatorModelDisability Survey

Universal targets

Vulnerable persons

Disability targets

1.1

Poverty

 

3.8

Health coverage and financial risk protection

9.c

Access to ICT and to internet

1.3

Social protection

4.5

Gender disparities, equal access in education

8.5

Full and productive employment and decent work

10.2

Social, economic and political inclusion

 

%

PwD

below $1.25(PPP)/day

*

x

 

 

 

 

 

x

%

PwD

covered by social protection/disability benefits

x

 

 

 

x

 

 

x

% PwD benefiting from health coveragex x    xSchool net attendance for CwDx    x xUnemployment rate (by PwD)x     xx% PwD owning a mobile phone*  x   x% PwD with internet access*  x   x

* To be added in the next revisionx Already covered

Disability indicators for the SDG framework covered in the MDSSlide11

11

20042015Slide12

12

2004Slide13

132015Slide14
Slide15

15

LowExtreme

Disability

World population on the disability continuum

Number of personsSlide16

16

20042015Slide17

Environmental factors

Personal factors

Health condition

Impairment in

b

ody functions & structures

Activity

limitation

Participation

restriction

17

Because of your health, do YOU HAVE …. ?

2004

2015Slide18

d

ifficulties because of your health

The

result of the interaction of capacity with the environment and the person

In the MDS we capture both, Slide19

19

2004Slide20

20

2015

Difficulties because of

your health …

The

result of the interaction of capacity with the environment and the

person…

?Slide21

We want to understand disability and not only calculate its prevalence 21Slide22

Content of the MDS

Section3000 (A+B)Environmental factors

Section 5000

Health

Conditions &

Capacity

Section

4000

Functioning

Section

1000

Socio-demographic Characteristics

Section

6000

Health Care Utilisation

Section

2000

Work History and Benefits

Section

7000

Well-Being

Section

8000

EmpowermentSlide23

First pilot study, August 2014

Rural and urban areas Convenience sample, 500 interviews23Example CambodiaSlide24

No difficulties

Extreme

difficulties

CAPACITY

(difficulties because of your health)

Cut-off score

47.37

Severe capacity difficulties

Mild

capacity difficulties

No

capacity difficulties

Moderate

capacity

difficultiesSlide25

How much of a problem is getting things done as required at work?

To what extent does your workplace or school make it easy or hard for you to do the things you need or want to do at work or school?

N

No disability

N=27

Mild disability

N=144

Moderate disability

N=200

Severe disability

N=128

Currently not working

29

3,7 %

4,51 %

4,4 %

14,43 %

Working

399

96,3

%

94,73

%

93,41

%

79,38

%

Other working situation**

11

0

0,75 %

2,2 %

6,19 %

**sick leave, retired by ageSlide26

How much of a problem do you have in engaging in local or national politics and in civil society

organisations?How much of a problem did you have with voting in the last elections?Slide27

Finished: Cambodia (N=500), Chile (N=300), Malawi (N=500), Pakistan (N=3977)

Ongoing: Oman (N=500)In preparation: Brazil (N=2000)27Pilot StudiesNational Disability Surveys

Finished

: Sri Lanka, Chile

Planned

: Oman, Brazil, The PhilippinesSlide28

AFRO

EURO

EMRO

AMRO

SEARO

WPRO

Regional implementation from 2016 onSlide29

Implemented by WHO in 2002–2004 in partnership with 70 countries to generate information on the health of adult populations and health systems.

The total sample size in these cross-sectional studies includes over 300 000 individuals (representing 64% of the world population) .29World Health SurveySlide30

The largest multinational health and disability survey everA single set of questions with

consistent methods to collect comparable health data59 countries (representing 64% of the world population) had weighted data sets that were used for estimating the prevalence of disability of the world’s adult population30WHS and DisabilitySlide31

31Slide32

The WHO Multi-Country Surveys team developed SAGE as a data collection platform to compile comprehensive information on the health and well-being of adult populations.

SAGE has adapted and added to the methods and instruments developed by WHO for the World Health Survey.32Study on Global Ageing and Adult Health (SAGE)Slide33

SAGE collects household data primarily on persons aged 50 years and older in China, Ghana, India, Mexico, Russian Federation and South Africa

Data also collected in the adult population aged 18 to 49 years in 23 additional countries.33Slide34

34

HEALTH STATESCapacity in multiple domains

VALUATION OF HEALTH STATES

WELL BEING

INDIVIDUAL CHARACTERISTICS

Socio-demographics

Income

Economic

activity

Health

Insurance

Minority

status

TIME

USE

SOCIAL NETWORKS

/ COHESION

COVERAGE

UTILISATION OF SERVICES

HEALTH & HEALTH RELATED OUTCOMES

RISKS FACTORS

CHRONIC DISEASES

Tobacco

Alcohol

Physical

Inactivity

Nutrition

Morbidity

- Health

conditions

MORTALITY

HOUSEHOLD CHARACTERISTICS

Composition

Living conditions

Economic status Consumption Geographical locationOverlap SAGE MDSSlide35

35

HEALTH STATESCapacity in multiple domains

VALUATION OF HEALTH STATES

WELL BEING

INDIVIDUAL CHARACTERISTICS

Socio-demographics

Income

Economic

activity

Health

Insurance

Minority

status

TIME

USE

SOCIAL NETWORKS

/ COHESION

COVERAGE

UTILISATION OF SERVICES

HEALTH & HEALTH RELATED OUTCOMES

RISKS FACTORS

CHRONIC DISEASES

Tobacco

Alcohol

Physical

Inactivity

Nutrition

Morbidity

- Health

conditions

MORTALITY

HOUSEHOLD CHARACTERISTICS

Composition

Living conditions

Economic status Consumption Geographical locationOverlap SAGE MDSFUNCTIONING in multiple domainsENVIRONMENTAL FACTORSFacilitating and hindering aspects of the broad environment Social Support & RelationshipsAttitudes of othersAccessibility to InformationPersonal assistanceAssistive devices: mobility and self-care, seeing, hearing & communicationFacilitators: education, work and at homeEMPOWERMENT + WG-6Need of care and support because of health problemsSlide36

Alarcos Cieza, MSc, MPH, PhDDisability and Rehabilitation

World Health OrganizationAvenue Appia 201211 Geneva 27Switzerland Tel.: +41 22 791 1998Fax: +41 22 791 4874Email: ciezaa@who.intWebsite: www.who.int/disabilities/36